This list of organizations has been created by MN Hands & Voices at Lifetrack to let parents know about some of the most important resources available. Our directory is updated annually. This list is not exhaustive, and details about organizations can quickly become outdated. We encourage you to contact the organizations directly for the most current and comprehensive information.
About: Through advocacy, education, research and financial aid, AG Bell helps to ensure that every child and adult with hearing loss has the opportunity to listen, talk and thrive in mainstream society. With chapters located in the United States and a network of international affiliates, AG Bell supports its mission: Advocating Independence through Listening and Talking!
Services include: magazine, academic journal, financial aid and scholarship awards, special interest section for parents, and many other programs.
About: ASDC members receive The Endeavor Magazine, special pricing for their Biennial Conventions, unlimited use of their 800 information and referral line, and special pricing for their speakers bureau. Families of deaf and hard of hearing children may join ASDC through their First Year Free Program. For more information visit the ASDC website.
About: Although direct services are for North Carolina residents, this organization has an excellent website for parents.
Services include: impartial information about all communication approaches and educational settings, information and support to parents regarding educational rights and procedures, assistive technology, and audiology.
Services include: information about early measurement of hearing, effective education for children and families, creating auditory environments when instructing children who are deaf or hard of hearing, genetics, sign language, and cochlear imlpants.
About: Hearing loss can affect a child’s ability to develop communication, language, and social skills. The earlier children with hearing loss start getting services, the more likely they are to reach their full potential. If you are a parent and you suspect your child has hearing loss, trust your instincts and speak with your child’s doctor. Don’t wait!
About: The website provides information regarding captioning and CART, specifically for people who are hard of hearing and deaf as well as for officials who decide how access services will be provided. CART allows deaf and hard‐of‐hearing individuals to fully participate in activities such as conferences, religious services, appointments, and school. CART captioners accompany people to the appointment, class, etc. and use a stenotype machine and a laptop to instantly transcribe the spoken words into text that a person with hearing loss can read on a screen.
The CART Provider Directory on the NCRA Web site allows you to find a CART provider in your area by city and state. Many of the CART providers offer remote CART services as well. This is a wonderful resource that connects consumers with providers in an easy‐to‐use manner. Please go to the CART Directory: http://www.ncrasourcebook.com/ to find a CART provider near you.
Information includes: how to locate a CART provider, what to expect from a CART provider, where CART can be used, and resources for obtaining CART in the elementary, secondary and post secondary school settings. Additional information can be found at the NCRA Home Page: http://www.ncra.org/
About: "While the site was previously funded via a series of Federal grants with the goal of enhancing U.S. Deaf Education Teacher Preparation Programs, the site is now self-funded with the goal of enhancing collaborative efforts between parents and professionals as they work to share what we know, and learn what we need, to further improve the social, linguistic, academic, and post-secondary learning opportunities and performance of children who are deaf/hard of hearing (d/hh)." -deafed.net
In the "Jobs & Resumes" section you are able to post and search for jobs and resumes.
In the "Topical Conversations" section, learn about the "frequently encountered problems" (FEPs) that impede the teaching, learning and performance of children who are d/hh, and what can we do to resolve these FEPs?
The "Knowledge Base & Calendar" section will be used to share both established and emerging information concerning informational resources to enhance the teaching, learning, and performance of children who are d/hh.
The "Collaborative Opportunities" section is designed to inform individuals of an evolving number and range collaborative opportunities concerning children who are d/hh.
Initially, the Web site will focus upon informing users of researchers requests for participants to be involved within their empirical investigations. An array of such opportunities is currently available via the Hands & Voices Web site section entitled "Research / Survey Opportunities."
Services include: ADA Mediation Program, ADA Regulations and technical assistance materials, other publications related to disabilities rights laws, and website links to many other resources, such as “children with disabilities” and “resources for parents.”
About: “Learn to recognize pitfalls and avoid mistakes that prevent parents from successfully advocating for their children.” The site includes articles, checklists, sample letters, charts, and resources.
Services include: on-line access to Yellow Page for Kids with Disabilities, created so that “people who love and work with children can get reliable information, support and connect with one another. Parents can use this site to find many kinds of resources, government programs, grassroots organizations, and support groups.”
About: The Global Coalition of Parents of Children who are Deaf or Hard of Hearing (GPOD) promotes improved systemic protocols and practices which encourage informed choice and the empowerment of families with a deaf or hard of hearing child throughout the world.
About: We're a parent-driven, non-profit organization providing families with the resources, networks, and information they need to improve communication access and educational outcomes for their children. Our outreach activities, parent/professional collaboration, and advocacy efforts are focused on enabling Deaf and Hard-of-Hearing children to reach their highest potential.
Hands & Voices is an organization founded in Colorado that has expanded to many other chapters including Minnesota Hands & Voices. More information can be found at the headquarter website at: www.handsandvoices.org.
Publications: "The Communicator" is a quarterly newsletter full of cutting edge information for families with children who are deaf or hard of hearing and the professionals who work with them. Annual subscriptions are available for $25/family and $40/professional. Checks payable to Hands & Voices c/o Lifetrack Resources; 709 University Avenue West, St. Paul, MN 55104-4804.
Services include: information and referral, outreach events, educational seminars, advocacy, lobbying efforts, parent-to-parent networking, a newsletter, on-site training, workshops, and much more.
About: Their publications are “designed to meet the needs of parents of children with disabilities, regular and special educators, special education service providers, health care professionals, child advocates, and attorneys who represent children with disabilities.”
About: Assistive products include a full line of amplified phones, captioned phones, clocks with loud alarm or vibration alert, signaling systems, and small/large area listening systems. They are a master distributor of the most popular products in this industry and have been providing products to deaf and hard of hearing people since 1982.
Services include: Showroom/store and online catalogs for Equipment and Sign Language Materials. The Sign Language catalog includes these categories: Learning Sign Language, Children's Sign Language, Teacher Resources & Curriculums, Interpreting, Deaf Culture & History, Hearing Loss Resources, and much more. New products are continually being added to the website. Free catalogs available.
About: HLAA impacts accessibility, public policy, research, public awareness, and service delivery related to hearing loss on national and local levels. HLAA’s national support network includes an office in the Washington D.C. area and an extensive network of chapters and state organizations. The HLAA mission is to open the world of communication to people with hearing loss through information, education, support and advocacy.
Programs and services include membership which includes Hearing Loss Magazine - our bimonthly publication, printed informational materials, annual conventions, our nationwide Walk4Hearing, Americans with Disabilities Act (ADA) implementation guidelines, website and support for parents of children with hearing loss, workshops for members, consumers and professionals in education, rehabilitation, and health care service agencies.
About: The website home page says, “no matter what method of communication you have chosen, you’ll find interesting and supportive information.”
Services include: ability to search the site’s database by topics of interest, “ask the expert” section, featured articles, products, sites and books, and a discussion board on topics such as parenting, deaf/hard of hearing, and cochlear implants. This site also has a special “Hear Our Kids” section where young children and their families can submit their comments about what it is like to live with a hearing loss.
About: Institute scientists research the auditory system, at the level of function, as well as at the cellular, molecular and genetic levels. We also explore the neurological interactions between the auditory system and brain, and study ways to improve auditory implants, diagnostics, clinical treatments and intervention methods. We share our knowledge with the scientific and medical communities as well as the general public through our education and outreach programs.
The House Research Institute's Children's Auditory Research and Evaluation (CARE) Center is devoted to improving the communication ability of infants and children with auditory disorders through research, clinical services and education of professionals and families.
Services include: downloadable publications, links to resources, a full website in Spanish, Distance Education Parent Course, and on site hearing testing and preschool classrooms. In the Parent Courses, available in English and Spanish, “families of children age 5 and under can receive online or mailed materials in conjunction with personalized guidance in language listening, and learning.”
About: Our mission is to improve the quality of education afforded to deaf and hard of hearing students from birth to age 21 throughout the United States. The Clerc Center is federally funded and:
Operates two demonstration schools, Kendall Demonstration Elementary School and the Model Secondary School for the Deaf, both which are located on the campus of Gallaudet University and are tuition-free.
Publishes several resources, including Odyssey: New Directions in Deaf Education
About: As a national federation of state association, organizational and corporate affiliates, the advocacy work of the NAD encompasses a broad spectrum of areas, including but not limited to, accessibility, education, employment, healthcare, mental health, rehabilitation, technology, telecommunications, and transportation. The NAD website (http://www.nad.org) has a wealth of advocacy information and resources.
Programs include: Biennial National Conference, Described and Captioned Media Program (DCMP), Youth Programs (Junior NAD, Youth Leadership Camp, National Leadership Training Program, and Mrs. Deaf America Ambassador). NAD Law & Advocacy Center.
National Association of the Deaf Law Center
The mission of the National Association of the Deaf Law Center is to promote, protect, and preserve the rights and quality of life of deaf and hard of hearing individuals in the United States of America.
Services include: information, advocacy, legal representation, and youth programs.
About: NBDA was founded in 1982 because of Black leaders’ concern that the African-American community was not adequately represented in leadership and policy-making affecting their lives. The President must be Deaf and African-American, but membership and advocacy is open to all.
Services include: advocacy, membership, news reports, state chapters, and social activities.
About: As a multidisciplinary Center, our goal is to ensure that all infants and toddlers with hearing loss are identified as early as possible and provided with timely and appropriate audiological, educational, and medical intervention.
About: Cued Speech is multi-modal and sensory-integrated in providing the appropriate phonemic language base for literacy. The Cued Speech system provides cued listening, cued speechreading, cued language and cued speech. Cued Speech has been adapted to more than 70 languages. NCSA offers information about Cued Speech use with children and adults with a variety of hearing, speech, and language needs. Visit our website for comprehensive information and videos of families.
Services include: information and referral/networking, family camps, publications, instructor certification, On Cue newsletter, and Cued Speech charts and a free first-year membership for families new to Cued Speech. The on-line store and catalog has an extensive offering of books, software, games, instructional and information video CD/DVDs, t-shirts and gifts.
CuedSpeech.com (on-line store):
Site includes information, event listings, and news
Services include: research, publications, and newsletter. NIDCD’s new Noisy Planet campaign at http://www.noisyplanet.nidcd.nih.gov, focuses on tweens and the parents of tweens to educate children about their hearing and how to protect it.
Mission: To provide deaf and hard-of-hearing students with outstanding state-of-the art technical and professional college education programs, complemented by a strong liberal arts and science curriculum, that prepare them to live and work in the mainstream of a rapidly changing global community.
Services include: At RIT/NTID deaf students earn associate, bachelor’s or master’s degrees in more than 200 programs in Applied Science and Technology, Business, Engineering, Computing and Information Sciences, Imaging Arts and Sciences, Liberal Arts, and Science.
RIT/NTID’s deaf and hard-of-hearing students have access to faculty who use sign language, as well as unprecedented support services including interpreting, tutoring, career counseling, academic advising, and direct instruction in some course sections taught specifically for deaf students. Also, cooperative work experiences provide students the opportunity to apply the skills they learn in a job related to their field of study.
About: Pepnet2 (pn2) recognizes the full range of postsecondary education and training options available for individuals who are deaf or hard of hearing, including those with co-occurring disabilities, and strives to enhance the capacity of those institutions to appropriately serve this diverse student population.
Our mission and the focus of our resources, is to increase the education, career and lifetime choices available to individuals who are deaf or hard of hearing.
Live, one-on-one assistance in a variety of communication modes
In-person and online training
Materials that are downloadable, printable or available as hard copies
About: Text and Video Relay Services include: Hands On VRS, i711.com, and IP-Relay. These Purple Services are specially tailored to meet the needs of people who are deaf or who have profound hearing loss. Language Services offer a variety of services for deaf individuals. Purple Language Services also offer video remote interpreting (VRI) which offers on-demand interpreting services delivered over a live Internet video link.
Services include: presenters, speakers, workshops, and classes on such topics as the interpreting profession, interpreter preparation programs, certification, national ethical practices system, and interpreter referral services.
About: SSI provides monthly cash assistance to persons who have disabilities and limited income and resources. There is no minimum age limit for establishing eligibility based on blindness or disability.
For other offices go to www.ssa.gov and click on “contact us” then “office locator.”
St. Paul Office:
(651) 290-0054 (V)
(651) 290-4242 (TTY)
(612) 831-9026 (V)
(612) 832-5041 (TTY)
About: This is a ‘go-to’ site for professionals and family members seeking more information about the learning and social issues of children with hearing loss and what you can do to better support the future success of these children. Resources are at no cost, designed to be easy to understand quickly, and practical to use. Products and webcasts are of high value at a minimum price.
About: The Network's mission is to raise awareness of communication and education needs as well as to promote advocacy and research for those who have autism and are deaf/hard of hearing and/or blind/visually impaired.
About: The S.E.E. center promotes the following: early identification and intervention, development of improved English skills, understanding of principals of Signing Exact English and its use, information to parents on deafness and related topics, and the positive development of self concept in the deaf child.
Services include: information about the pros and cons of Signing Exact English and other communication choices, information and referral regarding hearing loss, parent information packet, workshops, and videotapes. The center also conducts weekend and weeklong Skillshops to improve sign communication skills of parents, interpreters, aides, extended family members, and anyone involved with deaf and hard of hearing children.
About: There are hundreds of articles, cases, newsletters, and other information about special education law and advocacy.
Services include: on-line access to advocacy library, articles, law libraries, free on-line newsletter, and bookstore. The site also contains two documents created especially for new parents called “Advocating for Your Child – Getting Started” and the “Wrightslaw Game Plan for New Parents.”
About: Find educational consultants, psychologists, educational diagnosticians, health care providers, academic therapists, tutors, speech language therapists, occupational therapists, coaches, advocates, and attorneys for children with disabilities on the Yellow Pages for Kids for your state.
Services Include: special education schools, learning centers, treatment programs, parent groups, respite care, community centers, grassroots organizations, and government programs for children with disabilities.
Babies are born with a unique set of characteristics, yet blissfully oblivious to any characteristics that may stand out. They are resilient and adaptable as they experience their environment. Babies who are identified as deaf or hard of hearing (dhh) rea…[more]
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Minnesota Department of Health
Early Hearing Detection and Intervention (EHDI) refers to the practice of screening every newborn for hearing loss prior to hospital discharge. Infants not passing the screening receive diagnostic evaluation before three months of age and, when necessary, are enrolled in early intervention programs by six months of age. All 50 states and the District of Columbia have Early Hearing Detection and Intervention (EHDI) laws or voluntary compliance programs that screen hearing.